Learning Disability England (LDE) – keeping Small Good Stuff members in the loop
A few months ago I shared with the network that I had been elected as a ‘paid supporter’ representative on the LDE Representative Body . I promised to keep Small Good Stuff members, with an interest in learning disability, informed about my work with LDE as things developed – so here goes as a starter for ten!
It’s been a busy few months with meetings, discussions and consultations on all sorts of issues. Things as diverse as:
- The new Down Syndrome Act 2022
- Do not resuscitate orders (DNAR)
- Care provider organisations given inadequate ratings by the Care Quality Commission (CQC)
- New plans around data gathering and use from the Department of Health and Social Care (DHSC)
- DHSC systems for tracking capacity in the sector
- Fair cost of care
- Measuring the impact of good commissioning
There has also been lots of discussion about LDE’s forthcoming conference events in March next year. The focus is Action Towards Good Lives and the emerging agenda looks really interesting.
The final thing I wanted to share is what I learned about the Good Lives: Building Change Together Framework, a coproduced document with 6 chapters that starts with people’s rights, explores positive practice and offers some ideas for change. Chapters include:
- A home
- Communication and staying connected
- The right support
- To love and be loved
- Effective voice
- Employment and contribution
Its prologue states:
…As a membership organisation, we can be a national focal point where people can work together, engaging in a common cause; building a world where people with learning disabilities lead good lives…Through our work we hear the frustrations, the irritations, and the heartbreak of individual and collective lived experience. Equally, we are fortunate to witness the green shoots of opportunity as courageous individuals, families, groups and paid supporters wrestle with some of the knotty issues that get in the way of individuals leading their best lives…This aim of this document is our humble first effort to harness some of this energy and activity. To begin, again, to articulate clearly what people we have engaged with say they want and need to live well. To highlight the challenges that currently exist and to offer some hopeful examples where these have been overcome…
The resonance between it and your work seems really strong and I wonder about the potential for even closer working between Small Good Stuff members and LDE moving forward. The LDE strapline says Stronger, Louder, Together! and that seems so important for all our work moving forward.
Please get in touch with me if you would like any more information about LDE or my work as a Representative. Oh and while I am on… becoming a member is low cost and well worth the effort so please so consider it https://www.learningdisabilityengland.org.uk/welcome/join-us/ .